Conference Speaker Recommendations from State Partners and ANCOR

 

Thank you to all of the states participating in this knowledge sharing effort. I hope this page will allow help all of us to improve our conferences and member benefits. Note:

If you have any questions or if you would like to contribute to this page, please contact Josh Rael at jrael@alliancecolorado.org

 

Suggested Keynote speakers for conferences -2016 to 2018

 

 

Rick Rader, MD, Director of the Morton J. Kent Habilitation Center

Dr. Rick Rader is the Director of the Morton J. Kent Habilitation Center at Orange Grove in Chattanooga TN, where he is engaged as a medical futurist - predicting the future medical problems of people with neurdevelopmental disabilities. He is cross trained in internal medicine and medical anthropology.

 

 Dr. Rader is Editor-in-Chief of Exceptional Parent Magazine, a nationally acclaimed journal focusing on the education of parents and professionals supporting individuals with special needs. He has received numerous national awards for excellence in health care publishing. He has published over one hundred articles on developmental disabilities.

 

 He was appointed as the first Special Liaison for Family Health Care at the President's Committee for People with Intellectual Disabilities. Dr. Rader has served as an advisor to two Surgeon General's in the field of health care for people with disabilities. He is on the Board of the American Association for Health and Disability and serves as the president of the American Academy of Developmental Medicine and Dentistry.

 

 He is a fellow of the American Association on Intellectual and Developmental Disabilities and a member of the Scientific Advisory Board of the International Brain Research Foundation. Dr. Rader serves on the editorial advisory board of the International Journal of Nursing in Intellectual and Developmental Disabilities and is on the board of MOVE International. He is a mentor to Project DOCC, a parent driven educational program teaching physicians the realities of caring for a child with special healthcare needs. He is an adjunct professor of Human Development at the University of Tennessee at Chattanooga, and a member of the Research Consortium for Sensory Integration Studies.

 

Dr. Rader is a founding member of the board and first president of the American Association for Multi- Sensory Environments (AAMSE) and a co-founder of the Initiative for the Defeat of Stigma.

 

http://www.orangegrovecenter.com/www/docs/100.410/

Orange Grove Center

615 Derby Street

Chattanooga, Tennessee 37404

Phone: 423.629.1451

habctrmd@aol.com

 

 

 

David Hingsburger

http://conversationsthatmatter.org/presenters/hingsburger-dave

-Joe is his assistant and his primary contact for scheduling events

(416) 749-6234 x238 Office

416-996-0509 Cell

daveandjoe@hotmail.com

David Pitoniak   http://www.dimagine.com/

 

Jonathan Martinis talking about supported decision making and independence - http://www.adalive.org/martinis_j

jgmartin@law.syr.edu

 

 

Mary Sowers, NASDDDS

msowers@nasddds.org

703-683-4202

 

 

Tatyana McFadden, the para-olympian and Deborah McFadden, her mother and  former Commissioner of ADD (appointed by President George Bush (the first one).

Judy Woodruff, PBS Commentator and mom of adult son with significant disabilities. 

Work phone 703-998-2497

Cell  202-330-2003

judycwoodruff@gmail.com

Eric Rosenthal, Disability Rights International

Founder and Executive Director

Phone: 202.296.0800, ext. 650

Email: Erosenthal@DRIadvocacy.org

http://www.driadvocacy.org/staff/eric-rosenthal/

 

 

Rachel Simon, Writer

http://www.rachelsimon.com/

To arrange for Rachel Simon to speak to your group, contact

Marc Goldman at marc@damonbrooks.com

805.604.9017

$2500-$5000

 

Cole Galloway, PT, PhD, Professor, Assoc. Chair, Department of Physical Therapy, University of Delaware, STAR Health Sciences Complex, Go Baby Go. Cole is the Co-Director of the Pediatric Mobility and Design Studio, Professor of Physical Therapy, University of Delaware. He is most interested in rapidly protoyping novel technology (often DIY) to assist children (and ‘older children’, aka adults) in maximizing their real world exploration – specifically combining low tech and high tech into ‘Go Tech’.

Go Baby Go (GBG) is the umbrella brand of the collaborative research and development efforts of: Sam Logan (Oregon State University), Michele Lobo (UDelaware) and Cole. Current GBG Projects include “Power Racers” (Logan, Galloway: modified ride on cars, Logan and Galloway), “Force Fields” (Galloway: body weight harness system within enriched environments such as the GBG Café’, functioning food kiosk equipped with a harness system which simultaneously assists adult with brain injuries in their physical and vocational rehabilitation) and “Super Suits”, (Lobo: functional fashions in which assistive technology is hidden within fashionable clothing).

His lab has enjoys funding from the National Institutes of Health, the National Science Foundation, the Department of Education, and the toy and assistive technology industry. He was awarded the APTA’s Outstanding New Academic Faculty Member (2005), the Pediatrics Section’s Research Award (2009). In 2014, Cole participated in TED MED, was named one of the twenty people making a difference in healthcare (Health Leaders Media) and was included in Buzzfeed’s “31 moments that restored our faith in humanity”. http://www.udel.edu/gobabygo/ Contact: jacgallo@udel.edu

 

ANCOR Staff

Barbara Merrill

Esmé Grant Grewal, Esq., Senior Director of Government Relations American Network of Community Options and Resources (ANCOR). Esmé works with the Government Relations Committee and ANCOR Government Relations team on all legislative and policy priorities and leads the organization’s relationships with Congress and the Administration. Prior to this role, Esmé served as the Director of Public Policy for the National Association of Councils on Developmental Disabilities (NACDD), where she worked with all State Councils on Developmental Disabilities on federal advocacy and policy priorities for individuals with intellectual and developmental disabilities. She has past appointments with the American Bar Association’s Commission on Mental and Physical Disability Law, and currently Chairs the American Branch of International Law Association’s Disability Committee. Esmé is Co-Chair of both the Developmental Disabilities, Autism and Family Support Task Force and International Task Force for the Consortium for Citizens with Disabilities, a coalition of over 100 leading national disability organizations based in Washington, DC. She also recently joined the Board of Quality Trust. Prior to joining NACDD, Esmé led the Disability Rights Program for the U.S. International Council on Disabilities and worked extensively with former Congressman, Majority Whip and author of the Americans with Disabilities Act, Tony Coelho. Esmé has served the San Francisco Mayor’s Office on Disability where she had the opportunity to participate in implementation of the City’s ADA Transition Plan. As an attorney and member of the California Bar Association, she has published multiple law reviews on various topics of disability law. She is a proud sibling to a brother and sister with developmental disabilities. http://www.ancor.org/about-ancor/staff/esme-grant Contact: egrant@ancor.org

Katherine Berland

Diane McComb

Gabrielle Sedor

 

Andy Minnion MBE, Director, RIX Research and Media, University of East London, UK. Andy’s background is in photography and new media production, both as a practitioner and educator, and he has become a leader in the field of new media and social inclusion research, development and knowledge exchange. Andy has been associated with UEL since 1992 when he first worked as a Lecturer in Video Production, in the Department of Cultural Studies. He established the Multimedia Production Centre at UEL's Docklands Campus in 2000 as the Head of the Department's Media Production teaching and research team. In 2001 he led the Multimedia and Learning Disability Research Project, which was a Mencap funded Directorate with the Knowledge Dock. In 2008 he founded the The Rix Centre for Innovation and Learning Disability, a research unit and Charity with a mission to explore and develop ways in which new web and social media can be used to help improve the quality of life of people with disabilities. In 2012 he was awarded an MBE for Services to the Education of People with Special Educational Needs in the Queen’s Birthday Honours. RIX Media in the UK have co-developed ‘easy-build Wiki website’ systems in partnership with people with IDD and their support circles, with training and guidance packages to enable person-centered planning and streamline the delivery of personalized services. http://rixresearch.org/ Contact: A.T.Minnion@uel.ac.uk

 

Minnesota - 2015

Aaron Cross

Motivation on Wheels

www.motivationonwheels.com

$2500 is what we paid him

Chris Heeter

Wild Institute

$2500 although this was negotiated, her normal rate is higher

 

Phil Gwoke

Bridgeworks: The Generations People

www.generations.com

$3500

 

 

Montana- 2015

Lisa Culp, Master Coach/Facilitator, FutureSync. Lisa brings over 20 years of organizational development depth and expertise to her role as a Master Consultant and Coach for FutureSYNC International. Lisa has graduate degrees in both Family Life and Adult & Organizational Learning and Leadership. She has expertise in the areas of communication strategies, human development, and business leadership.  One of Lisa’s past passions is her involvement with many anti-poverty efforts, including a three year opportunity working as the Director for the Bridge the Gap Project serving under-resourced college students through the Bill & Melinda Gates Foundation. More information is available at:  future-sync.com/about/team/lisa-culp/ Contact:    Email: lisa@future-sync.com

Greg Efta is President of Performance Innovations, LLC, a speaking, training and consulting company headquartered in Longwood, Florida. Greg began his professional speaking career over 25 years ago. His educational background in speech communication has provided him with keen insights into how people and organizations interact which has enabled him to create programs and consulting philosophies in leadership, team building, customer/patient relations, workplace safety, marketing/census development and others. He truly understands the challenges and needs of the constantly changing healthcare environment. Contact:  Email: gregefta@gmail.com  

Suzanne Crisp is the Director of Program Design and Implementation for the National Resource Center for Participant-Directed Services (NRCPDS) at the Boston College Graduate School of Social Work.  Ms. Crisp provides technical assistance to programs desiring to create/improve/enhance participant direction.  She is the content lead expert for all participant-directed managed care long-term services and supports efforts.   She is considered one of a few National Experts in participant-direction.  Former positions include Senior Research Leader with Truven (Thomson Reuters) and Director of Integrated Services with CMS Central Office where she led CMS in the adoption of Federal policy to allow individuals to manage their own services and supports and created the Federal Independence Plus initiative, a part of President Bush’s New Freedom Initiative. 

Contact:  Suzanne Crisp, 2902 Aspen Creek Court, Kingwood, TX  77345

Director of Program Design and Implementation, National Resource Center for Participant-Directed Services, Boston College, 281-360-2027 (Office)

 

Colorado- 2015 (Click HERE to view Alliance's 2015 June Summit page)

  • Cole Galloway, PT, PhD, Professor, Assoc. Chair, Department of Physical Therapy, University of Delaware, STAR Health Sciences Complex, Go Baby Go. Cole is the Co-Director of the Pediatric Mobility and Design Studio, Professor of Physical Therapy, University of Delaware. He is most interested in rapidly prototyping novel technology (often DIY) to assist children (and ‘older children’, aka adults) in maximizing their real world exploration – specifically combining low tech and high tech into ‘Go Tech’.

    Go Baby Go (GBG) is the umbrella brand of the collaborative research and development efforts of: Sam Logan (Oregon State University), Michele Lobo (UDelaware) and Cole. Current GBG Projects include “Power Racers” (Logan, Galloway: modified ride on cars, Logan and Galloway), “Force Fields” (Galloway: body weight harness system within enriched environments such as the GBG Café’, functioning food kiosk equipped with a harness system which simultaneously assists adult with brain injuries in their physical and vocational rehabilitation) and “Super Suits”, (Lobo: functional fashions in which assistive technology is hidden within fashionable clothing).

    His lab has enjoys funding from the National Institutes of Health, the National Science Foundation, the Department of Education, and the toy and assistive technology industry. He was awarded the APTA’s Outstanding New Academic Faculty Member (2005), the Pediatrics Section’s Research Award (2009). In 2014, Cole participated in TED MED, was named one of the twenty people making a difference in healthcare (Health Leaders Media) and was included in Buzzfeed’s “31 moments that restored our faith in humanity”. http://www.udel.edu/gobabygo/ Contact: jacgallo@udel.edu

  • Esmé Grant Grewal, Esq., Senior Director of Government Relations American Network of Community Options and Resources (ANCOR). Esmé works with the Government Relations Committee and ANCOR Government Relations team on all legislative and policy priorities and leads the organization’s relationships with Congress and the Administration. Prior to this role, Esmé served as the Director of Public Policy for the National Association of Councils on Developmental Disabilities (NACDD), where she worked with all State Councils on Developmental Disabilities on federal advocacy and policy priorities for individuals with intellectual and developmental disabilities. She has past appointments with the American Bar Association’s Commission on Mental and Physical Disability Law, and currently Chairs the American Branch of International Law Association’s Disability Committee. Esmé is Co-Chair of both the Developmental Disabilities, Autism and Family Support Task Force and International Task Force for the Consortium for Citizens with Disabilities, a coalition of over 100 leading national disability organizations based in Washington, DC. She also recently joined the Board of Quality Trust. Prior to joining NACDD, Esmé led the Disability Rights Program for the U.S. International Council on Disabilities and worked extensively with former Congressman, Majority Whip and author of the Americans with Disabilities Act, Tony Coelho. Esmé has served the San Francisco Mayor’s Office on Disability where she had the opportunity to participate in implementation of the City’s ADA Transition Plan. As an attorney and member of the California Bar Association, she has published multiple law reviews on various topics of disability law. She is a proud sibling to a brother and sister with developmental disabilities. http://www.ancor.org/about-ancor/staff/esme-grant Contact: egrant@ancor.org

  • Andy Minnion MBE, Director, RIX Research and Media, University of East London, UK. Andy’s background is in photography and new media production, both as a practitioner and educator, and he has become a leader in the field of new media and social inclusion research, development and knowledge exchange. Andy has been associated with UEL since 1992 when he first worked as a Lecturer in Video Production, in the Department of Cultural Studies. He established the Multimedia Production Centre at UEL's Docklands Campus in 2000 as the Head of the Department's Media Production teaching and research team. In 2001 he led the Multimedia and Learning Disability Research Project, which was a Mencap funded Directorate with the Knowledge Dock. In 2008 he founded the The Rix Centre for Innovation and Learning Disability, a research unit and Charity with a mission to explore and develop ways in which new web and social media can be used to help improve the quality of life of people with disabilities. In 2012 he was awarded an MBE for Services to the Education of People with Special Educational Needs in the Queen’s Birthday Honours. RIX Media in the UK have co-developed ‘easy-build Wiki website’ systems in partnership with people with IDD and their support circles, with training and guidance packages to enable person-centered planning and streamline the delivery of personalized services. http://rixresearch.org/ Contact: A.T.Minnion@uel.ac.uk

Indiana- 2017

  • Dr. Bartlette

Macaroni at Midnight” is an autobiographical profile of Dr. Bartlette’s social, psychological, and educational experiences as a Chippewa Indian child growing up with emotional, speech, and physical disabilities in an environment of poverty, family and social violence, juvenile delinquency, homelessness, child abuse, racism and alcoholism. His keynote will focus on how one person made a difference and helped him to overcome childhood disadvantages – could you be that one person to make a difference in the lives of the individual you serve?

 

Dr. Bartlette has received international recognition, ranging from England's "International Men of Achievement", "Who's Who in the World", "20 Most Interesting People in Stark County", and was nominated for the Marty Mann award. Bartlette has also worked with countless organizations, ranging from the National Minority Affairs Coalition, Advisory Board for Keystone Academy (school for the disabled in Texas), National Institute for Alternative Care Professionals and all branches of the Armed Services. He is widely recognized for his achievements, being named "Hometown Hero" and with cities honoring him with "Don Bartlette Day". Dr. Bartlette is currently chronicling his experiences in a manuscript titled "No Autographs, Please".

Minnesota - 2015

Montana- 2015

  • Lisa Culp, Master Coach/Facilitator, FutureSync. Lisa brings over 20 years of organizational development depth and expertise to her role as a Master Consultant and Coach for FutureSYNC International. Lisa has graduate degrees in both Family Life and Adult & Organizational Learning and Leadership. She has expertise in the areas of communication strategies, human development, and business leadership.  One of Lisa’s past passions is her involvement with many anti-poverty efforts, including a three year opportunity working as the Director for the Bridge the Gap Project serving under-resourced college students through the Bill & Melinda Gates Foundation. More information is available at:  future-sync.com/about/team/lisa-culp/ Contact:    Email: lisa@future-sync.com

  • Greg Efta is President of Performance Innovations, LLC, a speaking, training and consulting company headquartered in Longwood, Florida. Greg began his professional speaking career over 25 years ago. His educational background in speech communication has provided him with keen insights into how people and organizations interact which has enabled him to create programs and consulting philosophies in leadership, team building, customer/patient relations, workplace safety, marketing/census development and others. He truly understands the challenges and needs of the constantly changing healthcare environment. Contact:  Email: gregefta@gmail.com  

  • Suzanne Crisp is the Director of Program Design and Implementation for the National Resource Center for Participant-Directed Services (NRCPDS) at the Boston College Graduate School of Social Work.  Ms. Crisp provides technical assistance to programs desiring to create/improve/enhance participant direction.  She is the content lead expert for all participant-directed managed care long-term services and supports efforts.   She is considered one of a few National Experts in participant-direction.  Former positions include Senior Research Leader with Truven (Thomson Reuters) and Director of Integrated Services with CMS Central Office where she led CMS in the adoption of Federal policy to allow individuals to manage their own services and supports and created the Federal Independence Plus initiative, a part of President Bush’s New Freedom Initiative. 

     

    Contact:  Suzanne Crisp, 2902 Aspen Creek Court, Kingwood, TX  77345

    Director of Program Design and Implementation, National Resource Center for Participant-Directed Services, Boston College, 281-360-2027 (Office)

 

ANCOR

Alaska

Peter Leidy has been learning from people with disabilities since 1983. Peter is an international consultant, facilitator, listener, learner, improviser, and speaker who focuses on personalized supports and community membership for people with disabilities. He also writes and sings songs about human serviceland and those who find themselves connected to it. 

Peter conducts workshops, develops training materials, writes songs, speaks and sings at conferences, and works with organizations, government agencies, families, and paid supporters to promote positive support, inclusion, DSP retention, building healthy relationships, and thinking differently about people who are called “challenging.”  (Peter himself is known to be non-compliant at times, and often exhibits attention-seeking behavior.)

For almost 20 years he worked for Options in Community Living, a supported living agency in Madison, Wisconsin.   His roles included direct support, service coordination, recruiting and supporting direct service staff, community building, and administrative responsibilities. 

Peter has worked throughout the U.S. as well as Canada, the UK, and Australia.  www.peterleidy.com

National and Regional Conferences

 

Siz State Summit (Region 8- CO, MT, ND, SD, UT, WY) - 2015

  •  

Get in Touch

Alliance Colorado

 

Tel: 303.832.1618
Email: info@alliancecolorado.org
Address​​​​​​: 

1410 Grant Street Suite B-305

Denver, Colorado, 80203

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